RE-ACT Congress and IRDiRC Conference 2021

The BLACKSWAN Foundation and IRDiRC, the International Rare Diseases Research Consortium, are glad to announce the online RE(ACT) Congress and IRDiRC Conference 2021 – 13-15 January.

This joint online event will continue the IRDiRC Conference series (4th edition) and the RE(ACT) Congress series (6th edition). It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research. Patients and patient organizations, who are committed to research, will also be in attendance to share their experiences and perspectives.

The RE(ACT) Congress – International Congress of Research on Rare and Orphan Diseases – was initiated in 2012 by the BLACKSWAN Foundation to create a forum for and promote scientific cooperation and research on rare and orphan diseases. IRDiRC – launched in April 2011 at the initiative of the European Commission and the US National Institutes of Health – fosters international collaboration on rare disease research by bringing together researchers, funders and patient advocacy organizations that work collaboratively within a multinational consortium.

The joint online edition of the 6th edition of the RE(ACT) Congress and the 4th IRDiRC Conference from 13-15 January 2021 is being organized in collaboration with the European Joint Program Rare Diseases (EJP RD) and in partnership with Eurordis (European alliance of patient organizations) and RDI – Rare Diseases International (global alliance of people living with a rare disease).

On behalf of the Organizing Committee for the RE(ACT) Congress and IRDiRC Conference 2021:

Dr. Olivier Menzel
Chairman and founder
BLACKSWAN Foundation

Dr. Daria Julkowska
Coordinator
EJP RD

Dr. Lucia Monaco
Consortium Assembly Chair
IRDiRC

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